My Blog Bubble

Can we ask just one thing of you:- Please stop asking me how Mum is.  I know you mean well and you honestly do care; you want to know that she is ok: but we can't tell you that. In fact we are tired of having to repeat ourselves and remind ourselves that Mum isn't going to get better.  That this is it.  That we can't help her but can on;y make her comfortable. Maybe ask how I am, or if there is anything you can do, or just give us a hug.  Maybe just squeeze our shoulder and don't say anyhting.  If we want to talk, I promise, we will.  Sometimes, like my Blog, it is cathartic.  Other times it hurts in a way I cannot explain. The best thing to do is send a message, a text, an email, and if/when we feel like it we will respond.  Forgive us if we see you are calling and cannot take your call.  It is tiring, emotionally, to drag our way through a conversation we do not want to have. We know you care and we don't want to appear rude but this is a new thing for

In 1996 Mum was diagnosed with Multiple Sclerosis (MS) and our lives changed forever.  Rachel and I were to realise just how fallible our parents were.  Both she and I recalled a time when we lived with Mum and were watching a documentary on the TV; it was about a man that had MS and his story.  He fell ill and got worse and worse until one day he lost all control of his muscles and could do nothing for himself or speak.  We both vividly remember Mum saying "Girls if ever i should become like that please kill me".  Little did we know that less than 10 years later fate would diagnose our mum with this horrible illness. I was away at Uni in 1996 and felt useless.  When I would come home I would do all I could and make sure others rallied around.  Mum started to be able to talk and walk again and her symptoms went in to remission. .  Neurologists decided this was not the first episode but probably the second - her specialist having written on her notes that he suspected M